Response 680092727

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About you

3. Which of the following best describes you?

Please select one item
(Required)
Medicine sponsor/manufacturer/wholesaler representative organisation
Health professional representative organisation
Consumer representative organisation
Government agency
Research/academia/media
Individual sponsor/manufacturer/wholesaler/retailer
Individual health professional, please specify type
Individual consumer/general public/community member
Other, please specify

6. Have you been affected by a medicine shortage or discontinuation in the last 12 months?

Please select one item
Yes
No
Unsure

7. If yes, please list which medicine shortage(s) and/or discontinuation(s).

Mounjaro

Planning for medicine shortages and discontinuations

8. What do you do to plan proactively for a medicine shortage or discontinuation? Select all that apply.

Please select all that apply
Monitor medicine availability (supply, demand)
Seek out information about shortages and discontinuations
Manage stock levels
Plan for alternative treatments in case of shortage
Change the way medicine is prescribed/dispensed/taken (e.g. rationing)
Other

9. Please explain in more detail how you plan proactively for a medicine shortage or discontinuation, including any barriers or challenges you experience.

I have had weeks without the medication . This is not right I want to continue with the medication but I can’t, because I can’t find it for weeks at a time.

Responding to medicine shortages and discontinuations

11. Please outline how you respond to a medicine shortage or discontinuation, including any barriers or challenges you experience.

The barriers most of us have regarding Mounjaro in particular is the way a lot of people get spoken to asking about it. Some of the chemists can be quite rude when you ring up and ask about it. I know they must get a lot of people asking but can speak with courtesy to people. I belong to Facebook mounjaro group and many people have said the same thing.

12. Please describe in detail where any of the following have helped you to respond to a medicine shortage or discontinuation:

Technology

Communicating about medicine shortages and discontinuations

13. Where do you get information about a medicine shortage or discontinuation? Select all that apply.

Please select all that apply
Health professional organisations
Patient organisations
Industry organisations
The TGA and other federal government agencies
State and territory government agencies
The media, including social media
Other sources, please specify

14. What information or updates about a medicine shortage or discontinuation do you find most helpful and from where?

Chemists they check with a warehouse if it’s not available what do you do? Eli Lilly don’t update the website just say it’s coming they are no help.

15. What challenges do you face when receiving information about medicine shortages or discontinuations?

I feel helpless I do not want to stop this medication . Have been on it since November , then they keep saying it is out of stock I am getting very frustrated.

16. What challenges do you face when sharing information about medicine shortages or discontinuations?

I have already answered that.

17. What do you think about the information on the TGA website about medicine shortages and discontinuations?

If the information was correct it would be ok.

18. Do you have any suggestions to improve the TGA’s communication of this information?

No

Impact of medicine shortages and discontinuations

19. Over the past 12 months, how much time did you spend on medicine shortages or discontinuations? What activities took the most time?

I have had weeks when I have been without Mounjaro. I have had my name down in several locations in case they got some in. I just had to wait it out until the next lot came in.

20. What were the most challenging activities and why?

Just the waiting in between doses.

21. Tell us about the health-related impacts of medicine shortages or discontinuations.

Worrying I was going to put the weight back on

22. Are there other impacts of medicine shortages and discontinuations that you would like to mention?

No

Improvement opportunities

23. What is the biggest problem within the following areas that you want fixed, and why?

General medicine shortages I am only here to talk about mounjaro though.

24. What do you think of the current TGA regulatory framework around medicine shortages and discontinuations?

No comment

25. Do you have any suggestions about how to improve medicine shortages and discontinuations in Australia (i.e., what does good management of medicine shortages and discontinuations look like for you)?

No

26. Do you have any further comments about medicine shortages and discontinuations in Australia?

No

Consent

27. I consent to the collection, use or disclosure of my personal information as set out in the privacy notice and select the following option regarding the publication of my submission:

Please select one item
(Required)
Publish my response, including both my name and organisation's name
Publish my response, without my name but including my organisation's name
Publish my response, without my name or my organisation's name (anonymously)
Do not publish my response